Alle Publikationen
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2017
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(2017): "You Need to Be a Good Listener". Recruiters' Use of Relational Communication Behaviors to Enhance Clinical Trial and Research Study Accrual. In: Journal of health communication 22 (2), S. 95-101. DOI: 10.1080/10810730.2016.1256356
DOI: http://www.ncbi.nlm.nih.gov/pubmed/28085636 Abstract: Medical and research professionals who discuss clinical trials and research studies with potential participants face an often daunting challenge, particularly when recruiting from minority and underserved populations. This study reports on findings from a focus group study of 63 research coordinators, study nurses, professional recruiters, and other professionals in Indianapolis, IN and Miami, FL who work to recruit from minority and underserved populations. These professionals discussed the importance of creating a sense of connection with potential participants as part of the recruitment and retention process. Building a relationship, however fleeting, involved a number of concrete behaviors, including listening to personal information, expressing empathy, and then providing reciprocal self-disclosures; having repeated contact, usually by working in the same environment over an extended period of time; demonstrating respect through politeness and the use of honorifics; going the extra mile for participants; offering flexibility in scheduling follow-up appointments; and creating a sense of personal and community trust by being truthful. The implications of these findings for clinical trial and research study accrual are discussed.
Keywords: Adult, Aufrichtigkeit/Truthfulness, Benutzen von Respektanrede/Honorifics, Bereitschaft zu Termin-Flexibilität, Bereitschaft, für den Interaktionspartner mehr Aufwand auf sich zu nehmen, als erwartet wird, Clinical Trials as Topic, Communication, Demonstration von Respekt gegenüber dem Interaktionspartner, Empathie, Female, Florida, Focus Groups, Häufigkeit des Kontakts mit dem Interaktionspartner, Humans, Indiana, Kommunikations-/Interaktionsprinzipien, Listening to personal information, Male, Middle Aged, Minority Groups, Patient Selection, Research Personnel/psychology/statistics & numerical data, Researcher-Subject Relations, Self-disclosure, time, Übermitteln von Gefühlen/Emotionen, Vulnerable Populations, Young Adult 2016
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(2016): Effects of culture-sensitive adaptation of patient information material on usefulness in migrants. A multicentre, blinded randomised controlled trial. In: BMJ open 6 (11). DOI: 10.1136/bmjopen-2016-012008
DOI: http://www.ncbi.nlm.nih.gov/pubmed/27881523 Abstract: OBJECTIVES To evaluate the usefulness of culture-sensitive patient information material compared with standard translated material. DESIGN Multicentre, double-blind randomised controlled trial. SETTING 37 primary care practices. PARTICIPANTS 435 adult primary care patients with a migration background with unipolar depressive disorder or non-specific chronic low back pain were randomised. Patients who were unable to read in the language of their respective migration background were excluded. Sufficient data were obtained from 203 women and 106 men. The largest group was of Russian origin (202 patients), followed by those of Turkish (52), Polish (30) and Italian (25) origin. INTERVENTIONS Intervention group: provision of culture-sensitive adapted material. CONTROL GROUP provision of standard translated material. MAIN OUTCOME MEASURES Primary outcome: patient-rated usefulness (USE) assessed immediately after patients received the material. SECONDARY OUTCOMES patient-rated usefulness after 8 weeks and 6 months, symptoms of depression (PHQ-9), back pain (Back Pain Core Set) and quality of life (WHO-5) assessed at all time points. RESULTS Usefulness was found to be significantly higher (t=1.708, one-sided p=0.04) in the intervention group (USE-score=65.08, SE=1.43), compared with the control group (61.43, SE=1.63), immediately after patients received the material, in the intention-to-treat analysis, with a mean difference of 3.65 (one-sided 95% lower confidence limit=0.13). No significant differences were found for usefulness at follow-up (p=0.16, p=0.71). No significant effect was found for symptom severity in depression (p=0.95, p=0.66, p=0.58), back pain (p=0.40, p=0.45, p=0.32) or quality of life (p=0.76, p=0.86, p=0.21), either immediately after receiving the material, or at follow-up (8 weeks; 6 months). Patients with a lower level of dominant society immersion benefited substantially and significantly more from the intervention than patients with a high level of immersion (p=0.005). CONCLUSION Cultural adaptation of patient information material provides benefits over high quality translations. Clinicians are encouraged to use culture-sensitive material in their consultations, particularly with low-acculturated patients. TRIAL REGISTRATION NUMBER German Register for Clinical Trials: DRKS00004241, Universal Trial Number: U1111-1135-8043, Results.
Keywords: Adult, Aged, Cultural Competency, culture sensitive, Depressive Disorder, Major/therapy, Disziplin, Double-Blind Method, Female, Focus Groups, Health Literacy, Humans, Italy, Kultur, Kulturtheorie, Language, Low Back Pain/therapy, Male, Medizin, Middle Aged, Pamphlets, Patient Education as Topic/methods, Patient Participation, Poland, Psychologie, Quality of Life, Rolle (Beruf), Russia, Transients and Migrants, Translating, Turkey -
(2016): Quality of Life for Diverse Older Adults in Assisted Living: The Centrality of Control. In: Journal of gerontological social work 59 (7-8), S. 512-536. DOI: 10.1080/01634372.2016.1254699
DOI: http://www.ncbi.nlm.nih.gov/pubmed/27824306 Abstract: This pilot project asked: How do ethnically diverse older adult residents of assisted living (AL) facilities in British Columbia (BC) experience quality of life? And, what role, if any, do organizational and physical environmental features play in influencing how quality of life is experienced? The study was conducted at three AL sites in BC: two ethnoculturally targeted and one nontargeted. Environmental audits at each site captured descriptive data on policies, fees, rules, staffing, meals, and activities, and the built environment of the AL building and neighborhood. Using a framework that understands the quality of life of older adults to be contingent on their capability to pursue 5 conceptual attributes-attachment, role, enjoyment, security, and control-we conducted 3 focus groups with residents (1 per site) and 6 interviews with staff (2 per site). Attributes were linked to the environmental features captured in the audits. All dimensions of the environment, especially organizational, influence tenants' capability to attain the attributes of quality of life, most importantly control. Although many tenants accept the trade-off between increased safety and diminished control that accompanies a move into AL, more could be done to minimize that loss. Social workers can advocate for the necessary multi-sectoral changes.
Keywords: 80 and over, Aged, Assistenz, Assisting Living Facilities, Attitude of Health Personnel, British Columbia, Community Networks, Female, Focus Groups, Gerontologie, Humans, Male, Personal Autonomy, Personal Satisfaction, Pilot Projects, PSYCHOLOGY, Quality of Life, Safety Management, standards -
(2016): What it Takes to Successfully Implement Technology for Aging in Place: Focus Groups With Stakeholders. In: Journal of medical Internet research 18 (5). DOI: 10.2196/jmir.5253
DOI: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4904824 Abstract: BACKGROUND There is a growing interest in empowering older adults to age in place by deploying various types of technology (ie, eHealth, ambient assisted living technology, smart home technology, and gerontechnology). However, initiatives aimed at implementing these technologies are complicated by the fact that multiple stakeholder groups are involved. Goals and motives of stakeholders may not always be transparent or aligned, yet research on convergent and divergent positions of stakeholders is scarce. OBJECTIVE To provide insight into the positions of stakeholder groups involved in the implementation of technology for aging in place by answering the following questions: What kind of technology do stakeholders see as relevant? What do stakeholders aim to achieve by implementing technology? What is needed to achieve successful implementations? METHODS Mono-disciplinary focus groups were conducted with participants (n=29) representing five groups of stakeholders: older adults (6/29, 21%), care professionals (7/29, 24%), managers within home care or social work organizations (5/29, 17%), technology designers and suppliers (6/29, 21%), and policy makers (5/29, 17%). Transcripts were analyzed using thematic analysis. RESULTS Stakeholders considered 26 different types of technologies to be relevant for enabling independent living. Only 6 out of 26 (23%) types of technology were mentioned by all stakeholder groups. Care professionals mentioned fewer different types of technology than other groups. All stakeholder groups felt that the implementation of technology for aging in place can be considered a success when (1) older adults' needs and wishes are prioritized during development and deployment of the technology, (2) the technology is accepted by older adults, (3) the technology provides benefits to older adults, and (4) favorable prerequisites for the use of technology by older adults exist. While stakeholders seemed to have identical aims, several underlying differences emerged, for example, with regard to who should pay for the technology. Additionally, each stakeholder group mentioned specific steps that need to be taken to achieve successful implementation. Collectively, stakeholders felt that they need to take the leap (ie, change attitudes, change policies, and collaborate with other organizations); bridge the gap (ie, match technology with individuals and stimulate interdisciplinary education); facilitate technology for the masses (ie, work on products and research that support large-scale rollouts and train target groups on how to use technology); and take time to reflect (ie, evaluate use and outcomes). CONCLUSIONS Stakeholders largely agree on the direction in which they should be heading; however, they have different perspectives with regard to the technologies that can be employed and the work that is needed to implement them. Central to these issues seems to be the tailoring of technology or technologies to the specific needs of each community-dwelling older adult and the work that is needed by stakeholders to support this type of service delivery on a large scale.
Keywords: Administrative Personnel, Aged, Aging, Assistenz, Attitude of Health Personnel, Biomedical Technology/methods/trends, Caregivers/psychology, Delivery of Health Care/trends, Female, Focus Groups, Geriatrics/methods/trends, Goals, Home Care Services, Humans, Independent Living/trends, Male, Mensch-Roboter-Interaktion, Middle Aged, Needs Assessment, Social Workers/psychology, Telemedicine/trends 2012
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(2012): Employing Textual and Facial Emotion Recognition to Design an Affective Tutoring System. In: Turkish Online Journal of Educational Technology - TOJET 11 (4), S. 418-426. Online verfügbar unter https://eric.ed.gov/?id=EJ989317, zuletzt geprüft am 22.11.2019
Abstract: Emotional expression in Artificial Intelligence has gained lots of attention in recent years, people applied its affective computing not only in enhancing and realizing the interaction between computers and human, it also makes computer more humane. In this study, emotional expressions were applied into intelligent tutoring system, where learners’ emotional expression in learning process was observed in order to give an appropriate feedback. Emotional intelligent not only gives high flexibility to the interaction of tutoring system, it also to deepen its level of human interaction. This study uses dual-mode operation: facial expression recognition, and text semantics as the main elements in affective computing to understand users’ emotions. Text semantics are used to understand learners’ learning status, and the results would contribute to course management agents in order to choose the most appropriate teaching strategies and feedback to the users. Facial expression recognition allows interactive agents to provide users a complete sound and animation feedback. (Contains 5 tables and 3 figures.)
Keywords: Affective Behavior, Animation, Artificial intelligence, Bedienung & Handhabung, Computer Assisted Instruction, Computer Software Evaluation, Computer System Design, Educational Technology, Feedback (Response), Focus Groups, Foreign Countries, Grounded Theory, Intelligent tutoring systems, Man machine systems, Mixed Methods Research, Multimedia Instruction, Natural Language Processing, Nonverbal communication, Programming, Psychological Patterns, Rating Scales, Teaching Methods, usability, Use Studies -
(2012): Designing robots for the elderly: Appearance issue and beyond. In: Archives of gerontology and geriatrics 54 (1), S. 121-126. DOI: 10.1016/j.archger.2011.02.003
DOI: https://doi.org/10.1016/j.archger.2011.02.003 Abstract: This paper provides the results of three focus groups organized in the framework of the ROBADOM project, aiming at designing a service type assistive robot for the elderly with mild cognitive impairment living at home. The main objective of these focus groups was to give some recommendations to engineers in charge of the design of the robot’s appearance. Results showed that although many humanoid robots were criticized by most participants, some small creative humanoid robots were appreciated. However, beyond the issue of the robot appearance, many ethical and social issues were raised. These focus groups offered an opportunity for participants to discuss the very idea of an assistive robot and to challenge some implicit preconceptions of the roboticists. Finally, we discuss how assistive robots could be designed considering the social context of the elderly and how to implicate the elderly as future end-users in the design process. (PsycINFO Database Record (c) 2016 APA, all rights reserved)
2008
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(2008): Value of wireless personal digital assistants for practice: perceptions of advanced practice nurses. In: Journal of clinical nursing 17 (16), S. 2146-2154. DOI: 10.1111/j.1365-2702.2008.02351.x
DOI: http://www.ncbi.nlm.nih.gov/pubmed/18705736 Abstract: AIMS AND OBJECTIVES The aims were to explore advanced practice nurses' perceptions on wireless Personal Digital Assistant technologies, to establish the type and range of tools that would be useful to support their practice and to identify any requirements and limitations that may impact the implementation of wireless Personal Digital Assistants in practice. BACKGROUND The wireless Personal Digital Assistant is becoming established as a hand-held computing tool for healthcare professionals. The reflections of advanced practice nurses' about the value of wireless Personal Digital Assistants and its potential to contribute to improved patient care has not been investigated. DESIGN A qualitative interpretivist design was used to explore advanced practice nurses' perceptions on the value of wireless Personal Digital Assistant technologies to support their practice. METHODS The data were collected using survey questionnaires and individual and focus group interviews with nurse practitioners, clinical nurse specialists and information technology managers based in British Columbia, Canada. An open-coding content analysis was performed using qualitative data analysis software. RESULTS Wireless Personal Digital Assistant's use supports the principles of pervasivity and is a technology rapidly being adopted by advanced practice nurses. Some nurses indicated a reluctance to integrate wireless Personal Digital Assistant technologies into their practices because of the cost and the short technological life cycle of these devices. Many of the barriers which precluded the use of wireless networks within facilities are being removed. Nurses demonstrated a complex understanding of wireless Personal Digital Assistant technologies and gave good rationales for its integration in their practice. CONCLUSIONS Nurses identified improved client care as the major benefit of this technology in practice and the type and range of tools they identified included clinical reference tools such as drug and diagnostic/laboratory reference applications and wireless communications. RELEVANCE TO CLINICAL PRACTICE Nurses in this study support integrating wireless mobile computing technologies into their practice to improve client care.
Keywords: Assistenz, Attitude of Health Personnel, Attitude to Computers, British Columbia, computer literacy, Computers, Handheld, Data Collection, Decision Support Systems, Clinical, Drug Information Services, Focus Groups, Health Knowledge, Attitudes, Practice, Humans, Medical Records Systems, Computerized, Mensch-Roboter-Interaktion, Motivation, Nurse Clinicians/education/organization & administration/psychology, Nurse Practitioners/education/organization & administration/psychology, Nurse's Role/psychology, Nursing Methodology Research, Qualitative research, Quality of Health Care, Surveys and Questionnaires, Technology Assessment, Biomedical, Time Management, Workload 2006
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(2006): "Tu" or "Vous?" A European qualitative study of dignity and communication with older people in health and social care settings. In: Patient education and counseling 61 (3), S. 363-371. DOI: 10.1016/j.pec.2005.04.014
DOI: http://www.ncbi.nlm.nih.gov/pubmed/15970421 Abstract: OBJECTIVE To examine the experiences of communication between older people and health and social care providers in six European countries. METHODS Focus groups were carried out with groups of older people (91 focus groups, 391 participants), and health and social care professionals (85 focus groups, 424 participants), in order to gain insights into concepts of good communications. Data collection and analysis continued concurrently according to the method of constant comparison. RESULTS Different styles of communication between professionals and older people were found to be capable of enhancing or jeopardising dignity. The use of appropriate forms of address, listening, giving people choice, including them, respecting their need for privacy and politeness, and making them feel valued emerged as significant ways to maintain older peoples' sense of self-worth and dignity. Despite being aware of good communication practices, health and social care professionals often failed to implement them. Lack of time, staff, resource scarcity, regulation and bureaucracy were cited as barriers, as was a lack of awareness and effort. CONCLUSIONS AND PRACTICE IMPLICATIONS The findings have important implications for health and social care professionals when they engage with older people.
Keywords: 80 and over, Adolescent, Adult, Aged, Attitude of Health Personnel, Attitude to Health, ATTITUDES, Choice Behavior, Communication, Confidentiality, Europe, Female, Focus Groups, Health Knowledge, Humans, Intergenerational Relations, Male, Middle Aged, Morals, Personal Autonomy, practice, Professional-Patient Relations, PSYCHOLOGY, Qualitative research, Self Efficacy, Semantics, Social Values, time, Videotape Recording
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