Alle Publikationen
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2018
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(2018): "It's all about incentive": Social technology as a potential facilitator for self-determined physical activity participation for young people with physical disabilities. In: Developmental neurorehabilitation 21 (8), S. 521-530. DOI: 10.1080/17518423.2017.1370501
DOI: https://doi.org/10.1080/17518423.2017.1370501 Abstract: PURPOSE To investigate the perceived role of social technologies in promoting physical activity participation for young people with physical disabilities and to identify design considerations that should be addressed when creating social technologies to promote physical activity. METHOD Interactive design workshops for young people with physical disabilities aged 12-18 (n = 8) were held. Data were analyzed using interpretive thematic analysis. RESULTS Young people perceived significant benefit for social technologies to promote physical activity as they have the potential to overcome many barriers to physical activity participation. Design features recommended by the participants included (1) options for diverse interests and preferences, (2) provision of informational support, (3) support through equitable technology design, (4) incentive through competition and play, and (5) opportunities to develop community. CONCLUSIONS Social technology has potential to provide tailored, equitable opportunities for social engagement and physical activity participation for young people with physical disabilities through needs- and preference-specific design.
2016
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(2016): Quality of Life for Diverse Older Adults in Assisted Living: The Centrality of Control. In: Journal of gerontological social work 59 (7-8), S. 512-536. DOI: 10.1080/01634372.2016.1254699
DOI: http://www.ncbi.nlm.nih.gov/pubmed/27824306 Abstract: This pilot project asked: How do ethnically diverse older adult residents of assisted living (AL) facilities in British Columbia (BC) experience quality of life? And, what role, if any, do organizational and physical environmental features play in influencing how quality of life is experienced? The study was conducted at three AL sites in BC: two ethnoculturally targeted and one nontargeted. Environmental audits at each site captured descriptive data on policies, fees, rules, staffing, meals, and activities, and the built environment of the AL building and neighborhood. Using a framework that understands the quality of life of older adults to be contingent on their capability to pursue 5 conceptual attributes-attachment, role, enjoyment, security, and control-we conducted 3 focus groups with residents (1 per site) and 6 interviews with staff (2 per site). Attributes were linked to the environmental features captured in the audits. All dimensions of the environment, especially organizational, influence tenants' capability to attain the attributes of quality of life, most importantly control. Although many tenants accept the trade-off between increased safety and diminished control that accompanies a move into AL, more could be done to minimize that loss. Social workers can advocate for the necessary multi-sectoral changes.
Keywords: 80 and over, Aged, Assistenz, Assisting Living Facilities, Attitude of Health Personnel, British Columbia, Community Networks, Female, Focus Groups, Gerontologie, Humans, Male, Personal Autonomy, Personal Satisfaction, Pilot Projects, PSYCHOLOGY, Quality of Life, Safety Management, standards -
(2016): To Have Control Over or to Be Free From Others? The Desire for Power Reflects a Need for Autonomy. In: Personality & social psychology bulletin 42 (4), S. 498-512. DOI: 10.1177/0146167216634064
DOI: http://www.ncbi.nlm.nih.gov/pubmed/26984014 Abstract: The current research explores why people desire power and how that desire can be satisfied. We propose that a position of power can be subjectively experienced as conferring influence over others or as offering autonomy from the influence of others. Conversely, a low-power position can be experienced as lacking influence or lacking autonomy. Nine studies show that subjectively experiencing one's power as autonomy predicts the desire for power, whereas the experience of influence over others does not. Furthermore, gaining autonomy quenches the desire for power, but gaining influence does not. The studies demonstrated the primacy of autonomy across both experimental and correlational designs, across measured mediation and manipulated mediator approaches, and across three different continents (Europe, United States, India). Together, these studies offer evidence that people desire power not to be a master over others, but to be master of their own domain, to control their own fate. zitiert von 30
2015
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(2015): Reconsidering Respect for Persons in a Globalizing World. In: Developing world bioethics 15 (2), S. 98-106. DOI: 10.1111/dewb.12045
DOI: http://www.ncbi.nlm.nih.gov/pubmed/24720355 Abstract: Contemporary clinical ethics was founded on principlism, and the four principles: respect for autonomy, nonmaleficence, beneficence and justice, remain dominant in medical ethics discourse and practice. These principles are held to be expansive enough to provide the basis for the ethical practice of medicine across cultures. Although principlism remains subject to critique and revision, the four-principle model continues to be taught and applied across the world. As the practice of medicine globalizes, it remains critical to examine the extent to which both the four-principle framework, and individual principles among the four, suffice patients and practitioners in different social and cultural contexts. Using the four-principle model we analyze two accounts of surrogate decision making - one from the developed and one from the developing world - in which the clinician undertakes medical decision-making with apparently little input from the patient and/or family. The purpose of this analysis is to highlight challenges in assessing ethical behaviour according to the principlist model. We next describe cultural expectations and mores that inform both patient and clinician behaviors in these scenarios in order to argue that the principle of respect for persons informed by culture-specific ideas of personhood may offer an improved ethical construct for analyzing and guiding medical practice in a globalized and plural world.
Keywords: Beneficence, Bewertung von sozialem Verhalten (/sozialer Angemessenheit), Clinical Decision-Making/ethics, Cultural Characteristics, culture specific, Decision Making, Developed Countries, Developing Countries, Ethical Analysis, Ethics, Medical, Family/ethnology/psychology, Humans, Internationality, Interviews as Topic, Islam, kulturspezifisch, Medizin, Observablen/Kriterien für sozial angemessenes Verhalten und dessen Bewertung, Pakistan, Personal Autonomy, Personhood, Physician-Patient Relations/ethics, Principle-Based Ethics, respect, Respekt, Transcultural Nursing, United States 2014
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(2014): What matters to the rich and the poor? Subjective well-being, financial satisfaction, and postmaterialist needs across the world. In: Journal of personality and social psychology 107 (2), S. 326-338. DOI: 10.1037/a0036856
DOI: http://www.ncbi.nlm.nih.gov/pubmed/25090131 Abstract: This study explored the importance of financial satisfaction versus postmaterialist needs for subjective well-being (SWB). Using the Gallup World Poll, we examined whether financial satisfaction and postmaterialist needs (pertaining to autonomy, social support, and respect) were universal predictors of the different components of SWB across the world, and whether their effects were moderated by national affluence. Results showed that financial satisfaction was the strongest predictor of life evaluation, whereas respect was the strongest predictor of positive feelings. Both measures predicted negative feelings to some extent. Multilevel analyses also revealed moderating effects of societal wealth. The association between financial satisfaction and SWB and that between postmaterialist needs and SWB were stronger in richer nations compared with poorer ones. This suggests that developed economies should continue to focus on both material and psychological aspects, and not disregard economic gains, as both measures are essential to well-being.
2011
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(2011): Respect for personal autonomy, human dignity, and the problems of self-directedness and botched autonomy. In: The Journal of medicine and philosophy 36 (5), S. 496-515. DOI: 10.1093/jmp/jhr035
DOI: http://www.ncbi.nlm.nih.gov/pubmed/22021657 Abstract: This paper explores the value of respect for personal autonomy in relation to clearly immoral and irrational acts committed freely and intentionally by competent people. Following Berlin's distinction between two kinds of liberty and Darwall's two kinds of respect, it is argued that coercive suppression of nonautonomous, irrational, and self-harming acts of competent persons is offensive to their human dignity, but not disrespectful of personal autonomy. Irrational and immoral choices made by competent people may claim only the negative liberty to be left alone. Lives disposed to autonomy are worthy of solidarity and active support in addition to the right of free choice and action. Autonomous premeditated desires (distinguished from mere consent) may embody transcendental choices, which transcend consideration of physical and psychological well-being. Choices made by incompetent persons (e.g., children and the mentally disabled) are not related to autonomy, but to self-directedness. The value of human dignity confers protection to self-directedness, but not at the expense of other vital interests.
Keywords: Bioethics, Decision Making, Humans, Morals, Personal Autonomy, Personhood, Philosophy, Medical 2006
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(2006): "Tu" or "Vous?" A European qualitative study of dignity and communication with older people in health and social care settings. In: Patient education and counseling 61 (3), S. 363-371. DOI: 10.1016/j.pec.2005.04.014
DOI: http://www.ncbi.nlm.nih.gov/pubmed/15970421 Abstract: OBJECTIVE To examine the experiences of communication between older people and health and social care providers in six European countries. METHODS Focus groups were carried out with groups of older people (91 focus groups, 391 participants), and health and social care professionals (85 focus groups, 424 participants), in order to gain insights into concepts of good communications. Data collection and analysis continued concurrently according to the method of constant comparison. RESULTS Different styles of communication between professionals and older people were found to be capable of enhancing or jeopardising dignity. The use of appropriate forms of address, listening, giving people choice, including them, respecting their need for privacy and politeness, and making them feel valued emerged as significant ways to maintain older peoples' sense of self-worth and dignity. Despite being aware of good communication practices, health and social care professionals often failed to implement them. Lack of time, staff, resource scarcity, regulation and bureaucracy were cited as barriers, as was a lack of awareness and effort. CONCLUSIONS AND PRACTICE IMPLICATIONS The findings have important implications for health and social care professionals when they engage with older people.
Keywords: 80 and over, Adolescent, Adult, Aged, Attitude of Health Personnel, Attitude to Health, ATTITUDES, Choice Behavior, Communication, Confidentiality, Europe, Female, Focus Groups, Health Knowledge, Humans, Intergenerational Relations, Male, Middle Aged, Morals, Personal Autonomy, practice, Professional-Patient Relations, PSYCHOLOGY, Qualitative research, Self Efficacy, Semantics, Social Values, time, Videotape Recording
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